Life-Stage

This theme focuses on different life-stages, from pre-natal through to end of life. Clicking on any life-stage will take you to a new page where you will see a list of stories that relate to a particular life-stage.

The sub-themes of life-stage are:

  • Pre-natal
  • Newborn and Infant
  • Child
  • Young adult
  • Adult
  • Older person
  • End of life

Clinical specialisms

This theme provides an alphabetical list of clinical specialisms. If you click on any specialism, you will be shown a list of stories that relate to that specialism. You can then select the story of most interest by clicking on the title. As we are continuing to add stories to the site, you may not yet find a story under every clinical specialism listed.

You might find searching under this theme to be most useful if you want to learn or teach about a specific clinical area.

The sub-themes of clinical specialisms are:

  • Cardiovascular
  • Dermatology
  • Endocrine
  • Gastrointestinal
  • Haematology
  • Immunology
  • Learning and development
  • Metabolic
  • Musculoskeletal
  • Neurology
  • Oncology
  • Opthalmology
  • Psychiatry
  • Renal
  • Reproduction and Fertility
  • Respiratory

Professional Role

The resource has been developed for health professionals (including nursing professionals and doctors) and the stories have been linked to these different roles across a range of healthcare settings. However, we believe the stories will be of educational value to other allied health professionals and social care professionals too, and they have been included in the list shown below.

In The Stories section, or Quick Theme search, you can select an option by clicking the hyperlink to find out all stories related to that particular professional role.

The sub-themes of professional role include:

  • Adult Nurse
  • Children's Nurse
  • Community-based medical practice (includes roles such as community paediatrician, psychiatrist)
  • Community-based Nurse (includes roles such as practice nurse, nurse practitioner, school nurse, disctrict nurse)
  • Dietician
  • GP
  • Health Visitor
  • Hospital-based medical practice
  • Learning Disabilities Nurse
  • Mental Health Nurse
  • Mid-wife
  • Other specialist nursing roles (includes roles such as research nurse)
  • Occupational therapist
  • Physiotherapist
  • Social worker
  • Speech therapist

Issues Raised

Each story has been reviewed to identify any particular issues it raises, and you might find that selecting a story under these sub-themes may be helpful if you are learning about, or planning a lesson on that topic area. Even if the topic is not directly about genetics, choosing a ‘genetics’ story as an example can help raise awareness about genetics.

You may be able to identify more issues – if so, we’d like to hear from you.

The sub-themes of issues rasied are:

  • Ethical issues
  • Reproductive choices
  • Communication
  • Care & management
  • Family as expert
  • Impact on family, friends or community
  • Education & awareness
  • Genetic knowledge for practice
  • Interprofessional practice
  • Termination of pregnancy

Genetic Intervention

This theme focuses on the different actions that an individual or family may experience through their involvement with genetics services and with other health professionals. Most of the interventions deal with different types of genetic tests. Clicking on any intervention will take you to a new page where you will see a list of stories that feature that intervention. You can then select the story of most interest by clicking on the title.

Inheritance

Being able to identify how a condition might have been inherited is a vital part of genetic diagnosis, and can provide families with important information about the chances of other family members also developing that condition, or of having another child with the condition (the recurrence risk). For many conditions, the type of inheritance may be identified by characteristic patterns seen in a family tree. For others, where more than one gene may be involved, or where genetics plays only a part in the development of a disease, the mode of inheritance may be much less clear. Sometimes, a definitive genetic diagnosis cannot be made and people have to be supported in coming to terms with this too.

In order to help you understand the different types of inheritance, and some of their characteristic features, the stories have been organised according to the headings shown below. You can select an option by clicking the hyperlink in The Stories section, or Quick Theme search, to find out all stories related to that particular type of inheritance.

The sub-themes of inheritence are:

Genetic Conditions

This theme provides an alphabetical list of genetic conditions. If you then click on any condition, you will be shown a list of stories that relate to that condition. To give you a flavour of what will be coming in the future, we have listed all of the different conditions covered by the stories collected so far. As we are continuing to add stories to the site, you may not yet find a story under every condition listed.

You might find searching under this theme to be most useful if you want to learn or teach about a specific condition. You will also find links to related support groups or to other sites where stories are featured about people with the condition.

Subcategories

Frequently Asked Questions

For help with Telling Stories audio and videos, click on the image below for our Frequently Asked Questions guide

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For help with Telling Stories audio and videos, click here for our Frequently Asked Questions guide

 

 

 

 

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We are always looking for new stories to add to this site, and are particularly keen to hear from more practitioners. Your colleagues can learn so much from how you’ve dealt with situations which involved genetics.

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Winners of the Association of Healthcare Communicators Best use of new media award 2009.
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Betsi Cadwaladr Scholarship Foundation Joint Award Winners 2013.

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